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    Roche provides regulatory update on Elevidys™ gene therapy for Duchenne muscular dystrophy in the EU

    Wipro Wins Multi-Year “Smart Grid” Deal from Saudi Electric Company

    Glion awarded prestigious Swiss Federal Accreditation

    Global childhood vaccination coverage holds steady, yet over 14 million infants remain unvaccinated – WHO, UNICEF

    New WHO guidelines for clinical management of arboviral diseases: dengue, chikungunya, Zika and yellow fever

    Air Canada Celebrates Canada Day with Limited-time Fare Discounts for Customers Flying from India

  • National
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    Veer Parivar Assistance Scheme and Free Legal Services Clinic inaugurated for soldiers

    “Historic launch of ‘Bima Sakhi Yojana’ under the leadership of Prime Minister Narendra Modi” –Shivraj Singh Chouhan

    India tourism Delhi to Celebrate Teej Festival on 28th July 2025

    NHRC, India to hold ‘Open Hearing & Camp Sitting’ at Hyderabad on 28th – 29th July, 2025

    Powering ‘Made in India’: Electronics Sector Gains from India–UK FTA”

    Streax Professional Announces Hairstyle Icon 2025 With OMG Face Of The Year: Calling India’s Hairstylists To Take Centre Stage

  • Business

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    Yali Capital Raises ₹893 Crores to Back India’s Deep Tech Revolution

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    Government Strengthens Measures for Consumer Protection and Curb Unverified Claims by Ayush Product Manufacturers

    Roche provides regulatory update on Elevidys™ gene therapy for Duchenne muscular dystrophy in the EU

    “Every transplant at Kauvery is a commitment to giving life where hope is fading”-Dr. S Vijayabaskaran, Executive Director – Bangalore & Hosur.

    Global childhood vaccination coverage holds steady, yet over 14 million infants remain unvaccinated – WHO, UNICEF

    “The relaunch is our way of expressing gratitude to our early patrons and reintroducing the space with renewed energy.”-Mr. Arup Chatterjee Regional Manger South spokesperson from Barbeque Nation Hospitality Ltd.

  • Technology
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    • Environment
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    Eveready Launches India’s 1st Ever Hybrid Torch with Sonakshi Sinha-starrer ‘Nikita Roy’

    Sony India launches WF-C710N earbuds with Dual Noise Cancelling and smart AI calling features

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    Volvo Cars reports Q2 2025 results, turnaround plan is fully on track

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    Breaking Barriers, Smashing Limits: Adani Sportsline’s Lakshmi Jadala Qualifies for Special Olympics 2027

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    ‘Waves’ an OTT platform that offers clean family-friendly content: Sunil Bhatiya, Deputy Director General, Doordarshan Kendra, Panaji

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    Apollo Bannerghatta Achieves 600+ Ultrafast Fully Automatic Robotic Knee Replacement Surgeries Under Dr. K.T. Rajashekar

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    Arunachal Minister inaugurates IITM Travel Fair in Bengaluru

    Tata CLiQ’s Moments that CLiQ Sale across fashion, luxury and beauty is set to begin the celebrations for the festive season

    “Every transplant at Kauvery is a commitment to giving life where hope is fading”-Dr. S Vijayabaskaran, Executive Director – Bangalore & Hosur.

    Absolute Hotel Services Signs Second Landmark Property in Rajasthan — New Upscale Retreat in Ajmer Marks Strategic Cluster Expansion

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The 10th Edition of Race For7 Held Across 21 Cities in India- Thousands of people united for a 7-kilometer run to raise awareness and support for rare diseases.

by FWM
February 23, 2025
in Health, Lifestyle, National
0

BENGALURU, February 23rd, 2025:

The Organization for Rare Diseases India (ORDI) held the 10th edition of its flagship annual awareness run, Racefor7. This 7-kilometer marathon aims to raise awareness about rare diseases and improve access to medical treatment and resources for patients and their families. This year, over 8300 participants, including patients and caregivers, took part in the run across 21 cities.
The Bengaluru run kicked off at 6:00 AM from St. Joseph Indian High School Ground, with renowned Shweta R Prasad flagging off the event. Over 3000 participants came together to support the cause in the city. Since its launch in Bengaluru in 2016, the event has grown into a nationwide movement. This year, under the theme “For Rare, everywhere”, the run took place simultaneously across multiple cities, including Bengaluru, New Delhi, Mumbai, Hyderabad, Chennai, Kolkata, Ahmedabad, Chandigarh, Jaipur, Thiruvananthapuram, Kochi, Pune, Mysuru, Mangalore, Alwar, Vrindavan, Pali, Jammu, Asansol, Bhatinda and Thrissur.

Racefor7 is an annual awareness run/walk held to commemorate World Rare Diseases Day, which falls on the last day of February each year. This global initiative aims to raise awareness among the public and policymakers about the challenges faced by individuals living with rare diseases. In 2025, World Rare Diseases Day will be observed on Friday, 28th February.
Adding to the discussions, Prasanna Shirol, Co-founder and Board Director, Organization for Rare Diseases India (ORDI), said, “I extend my heartfelt gratitude to the people of Bangalore and 20 other cities for standing with rare disease patients and caregivers. Through Race for 7, the people have embodied the spirit of “For Rare, everywhere”. This support reminds us that we are not alone and strengthens our voice in reaching policymakers and stakeholders and elevating awareness across India.

For the past 10 years Racefor7 has been strong catalyst in raising awareness and amplifying the voice of Rare Diseases Community to all the Stakeholders and General Public. This event is supported by 25 Registered Patient Advocacy Groups across the country, and over 30 Reputed Medical Institutions including Center of Excellence for Rare Diseases thus uniting India for Rare. ”

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Dr Ann Agnes Mathew, Consultant Paediatric Neurologist and Neuromuscular Specialist, said, “As we mark the 10th edition of Race for 7, let’s come together to show the world that India stands united in supporting families affected by rare diseases. For the past decade, Race for 7 has been dedicated to this cause, striving to create awareness and drive change.
Moving forward, we hope for greater support from the government, especially for Group 3 rare diseases, which impact thousands of Indians. Early intervention can transform lives, empowering individuals to become active, contributing members of society.”

Speaking about the event, Shwetha R Prasad, famous Kannada Television and movie actor, commented, “My journey with ORDI India began 10 years ago, and it’s been incredible to see how a small community has now expanded across 21 cities. It’s truly heartening to witness more people becoming aware of rare diseases and spreading the message. While this progress is encouraging, we still need greater support from both the public and the government. I remain hopeful that this movement will continue to grow with more support and compassion.”
A spokesperson from Roche, the main sponsor of the event, said, “Racefor7 is a remarkable initiative that brings together communities, caregivers, and advocates to spotlight the challenges faced by rare disease patients. This event is a testament to the collective effort required to drive awareness and policy change. At Roche, we are committed to supporting ORDI’s mission and working towards equitable healthcare access. By fostering collaboration between stakeholders, we can accelerate diagnosis, improve treatment accessibility, and make a lasting impact on the rare disease community.”

Racefor7 aims to drive policy-level impact and improve access to treatment across India. Through awareness, advocacy, and collaboration with policymakers, the focus is to accelerate diagnosis and pushing for better healthcare solutions for the rare disease community.”

Tags: “For RareAhmedabadAlwarAsansolBengaluruBhatindaChandigarhChennaieverywhere”HyderabadJaipurJammuKochiKolkataMangaloreMumbai.MysuruNew DelhiPaliPuneThe Organization for Rare Diseases India (ORDI)ThiruvananthapuramVrindavan

FWM

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